Educational & support resources for families

Fundación ALPE Achondroplasia
ALPE is a Spain based organization that offers support for people with achondoplasia and other skeletal dysplasias.
https://www.fundacionalpe.org/es

ANDO
A Portugal based organization that offers support for people with achondoplasia and other skeletal dysplasias.
https://www.andoportugal.org/

The Chandler Project
An organization dedicated to raising awareness of transformative research on achondroplasia and other skeletal dysplasias.
https://thechandlerproject.org/

Dwarf Athletic Association of America
The Dwarf Athletic Association of America is a nonprofit organization created in 1985 to develop, promote, and provide quality amateur level athletic competition opportunities for dwarf athletes in the United States.
http://www.daaa.org/

European Achondroplasia Forum
A network of specialists in the management of achondroplasia whose goal is to improve the overall care through establishing and promoting collaboration, cross-country sharing of best practices, development of recommendations and supporting the development of educational programs.
https://achondroplasiaforum.com/

Little People of America (LPA)
LPA is a US based organization that offers support, education, advocacy, and community for individuals with achondroplasia and other forms of dwarfism.
https://www.lpaonline.org/

Skeletal Dysplasia Management Consortium
A multidisciplinary group of clinicians dedicated to improving the clinical management of skeletal dysplasias. Many clinical resources are available for patients and families.
https://www.skeletaldysplasia.org/

Little Legs Big Heart Foundation
In February of 2024 Kristen, and her brand: Little Legs Big Heart, officially founded The Little Legs Big Heart Foundation. Kristen and The Little Legs BIG Heart Foundation are on a mission to empower and uplift individuals living with skeletal dysplasia and their families, redefining inclusivity and acceptance for the skeletal dysplasia community encouraging them to resiliently live life beyond height. Through advocacy, community support, and educational initiatives, we’re striding towards a world where differences are celebrated, and every set of ‘little legs’ dances to the rhythm of a big heart; navigating their journey with the best quality of life possible no matter what medical choices they make.
https://littlelegsbigheart.com/