Educational & support resources for families

If you or a loved one has achondroplasia, there are a variety of resources to learn more and connect with others. We’ve compiled a list of essential organizations that offer support and valuable information for families affected by achondroplasia.

Fundación ALPE Achondroplasia
ALPE is a Spain based organization that offers support for people with achondoplasia and other skeletal dysplasias.
https://www.fundacionalpe.org/es

ANDO
A Portugal based organization that offers support for people with achondoplasia and other skeletal dysplasias.
https://www.andoportugal.org/

The Chandler Project
An organization dedicated to raising awareness of transformative research on achondroplasia and other skeletal dysplasias.
https://thechandlerproject.org/

Dwarf Athletic Association of America
The Dwarf Athletic Association of America is a nonprofit organization created in 1985 to develop, promote, and provide quality amateur level athletic competition opportunities for dwarf athletes in the United States.
http://www.daaa.org/

European Achondroplasia Forum
A network of specialists in the management of achondroplasia whose goal is to improve the overall care through establishing and promoting collaboration, cross-country sharing of best practices, development of recommendations and supporting the development of educational programs.
https://achondroplasiaforum.com/

Little People of America (LPA)
LPA is a US based organization that offers support, education, advocacy, and community for individuals with achondroplasia and other forms of dwarfism.
https://www.lpaonline.org/

Skeletal Dysplasia Management Consortium
A multidisciplinary group of clinicians dedicated to improving the clinical management of skeletal dysplasias. Many clinical resources are available for patients and families.
https://www.skeletaldysplasia.org/